Angelman Syndrome Support Education and Research Trust (ASSERT) - Gwasanaethau cymorth i deuluoedd
Beth rydym ni'n ei wneud
ASSERT is a UK wide support group run by volunteers who have direct contact with people with Angelman Syndrome. A majority of volunteers are parents or relatives of children or adults with Angelman Syndrome. ASSERT can help in many ways. If you are a parent they can offer advice and support on a wide range of problems. If you are a carer or professional they can offer information based on real life caring experiences. ASSERT produce a regular newsletter, they hold regional meetings in different locations throughout the year, they maintain a 24 hour, seven day a week telephone support line and have established a national register of families indicating those willing to be a point of contact for families of those newly diagnosed with Angelman Syndrome. Angelman Syndrome (AS) is a rare neurological disorder affecting around 1:20,000 births. Characteristic features include delayed development, severe learning difficulties, little or no speech and issues with movement and balance.
All unrhyw un ddefnyddio'r gwasanaeth hwn?
Anyone can contact the support line. Patients however must be referred by their GP or other doctor sending a written referral to: Dr Jill Clayton-Smith, Genetic Medicine, 6th Floor St Mary’s Hospital, Oxford Rd, Manchester M13 9WL.
Manylion am wasanaeth gwasanaethau cymorth i deuluoedd
Iaith: Lleoliad cyfrwng Saesneg
- Yn gallu rhoi cymorth arbenigol i deuluoedd plant ag anableddau / anghenion ychwanegol Cysylltwch i drafod anghenion eich plentyn(plant) ymhellach.
- Mae gan staff perthnasol DBS cyfredol dilys?
Gwybodaeth gymdeithasol
Cyfeiriad
Gallwch chi anfon post yma:
PO Box 4962
CV11 9FD
Gwefan
https://www.angelmanuk.org/
Dulliau cysylltu
Ffôn: 0300 999 0102
Ebost: support@angelmanuk.org
Cyfryngau cymdeithasol
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